GovWire

TheUKgovernment and devolved administrations published the UKRare Diseases Framework in January 2021, setting out a shared vision for addressing health inequalities and improving the lives of people living with rare diseases across theUK.

The framework outlined 4 key national priorities:

• helping patients get a final diagnosis faster
• increasing awareness among healthcare professionals
• better co-ordination of care
• improving access to specialist care, treatment and drugs

To turn this vision into action, each of the 4UKnations has committed to developing nation-specific action plans detailing how these priorities will be addressed.

This is Englands second Rare Diseases Action Plan, following our commitment to publish action plans annually during the lifetime of the UK Rare Diseases Framework. This action plan has been developed in close collaboration with delivery partners across the health system and the rare disease community. It reports on progress against the 16 actions set out in the first Rare Diseases Action Plan and announces 13 new specific, measurable actions for the next year under the frameworks priority areas and underpinning themes.